anna's blog

Our beautiful, gorgeous little girl, Anna, has leukaemia. She was diagnosed on Monday 5 December 2011.

…and back into hospital…

Since being discharged on Monday, Anna has continued to feel really sick.

Although her temp is fine she is clearly not right. Her fracture is still sore, as is her tummy. Her skin is itching and she constantly says she can’t get comfy. She feels nauseous from the moment she gets up right through to going to bed. We’ve tried going to nursery and tried staying at home. She feels sick wherever she is. And going out any distance in the car almost guarantees vomiting. The general feeling is that there is impacted poo in her bowels which is building up higher and higher.

She is taking anti sickness medication ondansetron and metaclopromide, laxatives lactulose and movicol alongside her usual daily cocktail of drugs, but often struggles to keep them down. I’ve been in regular contact through the week with ward 2, keeping them updated, and they’ve been happy for us to manage it at home as she was still taking enough fluids and food. However on Friday, she was sick every time she had anything to eat or drink so we headed back into sick kids.

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She’s now on IV fluids, and additional, stronger laxatives and anti sickness are to be given. We are about to go down for an ultrasound. The doctors know that Anna has a high pain threshold (she lived with an undiagnosed fractured femur for 2 weeks) and also can become seriously ill very quickly. So they are being ‘extremely cautious’.

Anna is keeping herself as still as she possibly can, presumably to limit her nausea. Like many children, she instinctively knows what to do when she feels ill.

I don’t think she has smiled all week.

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Still sick

Anna is still in sick kids and feeling thoroughly miserable. After being admitted through A&E on fri night, she was put on ward 4 (not the oncology ward) as the hospital was so busy. Peter stayed that night and then I took over yesterday. She was moved to ward 2, where we always feel much more comfortable as they know Anna so well (although we are spending so much time on other wards other staff are getting to know Anna!).

Her temp has been below 38 degrees for 24 hours. The pain from her fractured femur is being effectively managed by morphine and she seems more comfortable but she is still being sick. She is having intravenous fluids through her portacath, and continuing to have her daily chemotherapy dose of mercaptopurine, as well as voriconazole for the previous fungal infection. Her stomach is very bloated and has been for a while now. It could be constipation from the variety of drugs so she is having laxatives. She has started vitamin d supplement and will also now have omeprozole to counter any stomach acid problems.

All Anna can think about is her next meal. She has been asking what will be for tea since 10am.

Nathan had a lovely afternoon at Neil and Courtnay’s fundraising talent show (thanks everyone for a superb effort!!!) and was then picked up by Peter when he returned from the hospital. Nathan knows the routine when Anna is in hospital. He enjoys getting to choose a sandwich and drink from M&S and eat it in the Anna’s cubicle during handovers.

Weekends in the hospital are much easier to manage than weekdays, when Nathan has to be got to and from school as well as someone being in the hospital with Anna during the day. Hopefully this won’t be a long stay…

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