However, since finishing treatment in March, she is in remission and looks increasingly healthy and and well. She goes to school every day and loves being with her friends. She can read, write and do sums. Last night, she danced at the school disco, this morning she met Santa at the school Christmas Fair. She is practising her lines for the nativity play and loves her weekly after school music class. She is just a 6 yr old girl doing all the usual things you would expect.
We continue to face daily challenges in terms of her spinal muscular atrophy but today, we celebrate the fact that 3 years on, she is still here.