We were at sick kids yesterday for Anna’s monthly four hour pomidranate infusion (bone strengthening treatment). Her bloods were checked and her white blood count was so good that the doctors decided she could stop taking the last two preventative medicines – Septrin (anti-viral) and Posaconazole (antifungal). So she is not on any medicines at all. I’m hoping we see a continued improvement in her general well being, as well as her skin settling down (possible side effect of posaconazole).
This also meant she could have her NG tube removed as it was only used to give her septrin. Having her NG tube out is a major step. She’s had one in for more than 2 years. Anna was most excited about now having a face painting butterfly done on both sides of her face now.
Before…
And after…
anna's blog 
What super news x
A fantastic place to get to. Butterflies are good things to think about. We look forward to seeing the picture!
What fantastic news. I am thrilled for you all and Anna’s smile shows she is thrilled too. LOL Viks xxx
A butterfly sounds so much more fun than an ng tube. Well done!
hi just checked the blog this morning on the off chance – what lovely, lovely news!! Anna you look beautiful. Well done
lots of love Gillean and Tom