anna's blog

Our beautiful, gorgeous little girl, Anna, has leukaemia. She was diagnosed on Monday 5 December 2011.

Final day of treatment

on February 5, 2014

20140205-200118.jpgToday is officially the last day of Anna’s treatment for leukaemia.

It is two years and two months since her diagnosis. She has had oral chemotherapy for most of those 789 days, regular intravenous and brain/spinal fluid chemotherapy, lumbar punctures, daily/weekly/monthly steroids and numerous blood transfusions.

She’s had a portocath put under her skin, a feeding tube down her nose and one very unpleasant bronchial wash.

She has been on antibiotics, antivirals, antifungals, antiemetics and a cocktail of other drugs to counteract the side effects of all of the above. She has had IV fluids, electrolytes, overnight liquid feeds and saline drips.

Pain relief has ranged from calpol to morphine.

She is a frequent visitor to x-ray, and also had ultrasounds, ECGs, CT scans, MRIs and a bone density scan.

She is known to many of the departments at sick kids – neurology, endinocrology, respiratory, orthopaedic and oncology.

I’ve lost count of how many nights we’ve spent in hospital or how many outpatient appointments she’s had.

She still had some walking ability when she was diagnosed but now she isn’t able to bear any kind of weight at all. Her bones are like tissue paper and break with the slightest trauma. She has had seven fractures (femur, knees, ankles, feet, wrists). We have no idea if she will recover any strength.

She’s also had three bouts of shingles, staff epidermidis (at least twice), kiebseilla, para flu, cellulitis, mouth ulcers, UTIs, aspergillus, rsv, septic/deranged liver, various other bacterial/viral infections and an extremely severe skin reaction. And there have been a couple of times when we thought she might not make it.

Although today is a day of celebration, it’s also something of an anti-climax as her steroids were stopped some months ago due to her getting continued infections. She had her last dose of chemotherapy over a week ago as it was stopped due to her low platelets and currently we are in sick kids as she has several infections. She had a platelet transfusion this morning and needs a red blood cell transfusion tomorrow. She’s also had her monthly 4 hour pomidronate infusion today today – her bone strengthening treatment.

She was due to have her final bone marrow/lumbar puncture done today but wasn’t well enough. It will probably take place next week. She still needs to have one catch up intrathecal/general anaesthetic, likely to take place on fifth of March. We will continue to come to clinic regularly and she will be having pomidronate monthly.

However, we are glad to get to today. She is still my beautiful, gorgeous daughter and now we can start planning for the future – Anna, me and Nathan. X

9 responses to “Final day of treatment

  1. Veronica Whiteside says:

    It’s amazing what people can find the strength to come through, one day at a time. Well done to you all! Heartfelt thanks for all the care and treatment Anna has received ( and is still receiving!) at Sick Kids.

  2. Catherine McInally says:

    Like everyone who reads this blog. I wish in my soul I could do something to mend , not just Anna but for you all.
    I admire all of your strength and courage for what has been and for the future.
    All my love
    Cathie xx

  3. Tracy says:

    One chapter closes, and another, hopefully happier and more peaceful chapter begins. Looking forward to watching you flourish and thrive in this next phase. Much love xxx

  4. Mary says:

    Wow, what a lot you’ve all had to deal with. Look forward to seeing you all and to a much happier time ahead, Mary xx

  5. Helen & Paul says:

    Congratulations to you all for getting through this incredibly challenging, exhausting and painful process. We hope much better things are ahead for you all. With love from Helen, Paul, Andrew & Ruthie xxxx

  6. Amanda says:

    Sending you all my best wishes for the next step on Anna’s journey. May she gain strength every day and never loose that beautiful smile.
    Lots of love
    Amanda xx

  7. Gilean says:

    Words cant really do this justice.
    Huge well done to you all. and huge thanks to all the staff at Sick Kids and elsewhere who have helped along the journey. Lots of love Gillean and Tom

  8. Sophie Dall says:

    Hello Family!!! Hope you remember me, and everything is going well for Anna!!! All my love, Sophie

    Date: Wed, 5 Feb 2014 22:47:46 +0000 To:

  9. Jane Hurworth says:

    So pleased the treatment is finished You have all had so much to deal with. I hope the next few years are much more fun Love from Jane Rich Freddie and Sammie

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