It’s always good to be out-of-hospital and back home. It was especially good to be back for Anna’s birthday and party – six excited girls, six pink teddies with fairy outfits and one fairy birthday cake (plus a lot of help from Heather and grandma Veronica). The perfect combination for a wonderful party!
It’s often hard to describe how many day-to-day activities Anna has trouble with but one particular Birthday present has allowed her to have a new achievement. In the past, Anna hasn’t had enough strength to push and pull a needle through felt In a children’s sewing kit. This time, she was determined to do it and, after a lot of trying – she did it! Here’s the actual moment…
Although this weather has been absolutely gorgeous (those of you reading this in England and elsewhere should know that even here in Scotland temperatures have been mid 20s this week), It really isn’t what I would have wished for when Anna still seems to have a fairly strong skin reaction to any kind of sunshine. I feel safer being in the house with Anna covered in factor 50 suncream– and then of course frustrated because all Nathan wants to do is go out and play in the sunshine! It’s so difficult getting a balance.
Anna has had a sore mouth today. Having examined it closely for ulcers, blisters, any areas of redness, checked her temperature, examined her elsewhere for a rash, shone a light in to see the back of her mouth for swelling and generally interrogated her about it, I’ve come to the conclusion that it may be a simple childhood occurrence – a baby tooth is ready to come out and an adult one is cutting in. It’s so easy to forget that all these things happen to Anna along with the full range of other medical things.
We’re off to Rachel house children’s hospice tomorrow for a few nights stay. I am so looking forward to it… update will follow.
anna's blog 
What a lovely update !glad to see Anna had a great party and enjoyed herself .lots of love from Davis, Anne and the girlsx