Finally, we know. Aspergillus fungal infection. That’s what she has got in both her lungs and bone marrow. Unpleasant but treatable with the anti fungal medication started last week, voriconazole.
She is already much, much better. Her temperature is generally lower, although still spiking every 12 hours up to 39 degrees. Her breathing is easier. Her oxygen levels have improved.
She is having physiotherapy on her chest several times daily, as well as continuing with her leg exercises.
She is still on liquid feed through her ng tube, a range of antibiotics, codeine for pain, fluids with additional potassium to restore levels and other bits and pieces.
Just now, she is sleeping peacefully, holding hello kitty in one hand and her Disney princess ring and bracelet on the other.
She is getting better. And looking gorgeous. Thank you everyone.
anna's blog 
She looks absolutely beautiful indeed!
Fantastic news you must be relieved .Hopefully you have quiet and unevenful night and both get some rest x
Thank God for a diagnosis and treatment that will give relief from the symptoms.
We are thinking of you all, lots of love
Eileen Simpson (Flora from Bonnytoun NS’s mum) xxxxx