anna's blog

Our beautiful, gorgeous little girl, Anna, has leukaemia. She was diagnosed on Monday 5 December 2011.

A dreadful day

on March 8, 2012

I’ve been quiet on the blog for a while. Daily life with Anna is just very time consuming. And we’ve been trying to sort out lots of other practical issues to give us more support, more on that in another post…

Yesterday was a dreadful, dreadful day, one which I didn’t think Anna would survive. She went from being generally unwell on tue evening to a critical state on wed morning. She had been sick at teatime (not unusual), sick at bedtime ( not unusual) and sick during the evening (again, not unusual). During the night, she continued to be obviously uncomfortable and was sick again. But around 7am, she became unconscious and we couldn’t wake her. Her pupils were tiny, her eyes open but not seeing, she was unresponsive, floppy and finding it harder and harder to breathe. I called an ambulance and in the time it took to come we thought she had stopped breathing. The telephone operator was giving us instructions on how to open her airways when the paramedics arrived. We raced through the rush hour traffic with sirens blaring and Anna on oxygen, and went straight into the resuscitation room where Anna was hooked up to monitors. It was terrifying until they began to work out the problem. Her blood sugar level was so low it wasn’t registering, which meant she wasn’t getting the glucose fuel she required to keep her body working. That’s why she could hardly breathe. Once she was given glucose, the response was almost miraculous. She sat up, demanded milk and cornflakes and instructed all of us to feed her! I was briefly relieved but it became clear there was still an unexplained problem and since then she has had bloods taken for testing and cultures, an MRI scan, ultrasound and CT scan. No one has come to a definite conclusion about the cause but seems to be a combination of infection and neurological reaction to one specific chemo drug. I know all the doctors are talking about it, trying to solve the puzzle. Tonight, she is calm and sleeping but still on 2 hr observations until more is known. We are back in ward 2 for at least the weekend but now confident she will come through this.

Thank you to everyone who helped us through this particular crisis. And please keep praying.

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20 responses to “A dreadful day

  1. Kate Leishman says:

    poor Anna…hope she’s on the mend soon. Keep your spirits up, you always look so bright and cheery when i see you!! Don’t know how you do it…but keep doing it!! love and hugs from Kate and Neve xx

  2. Rachael says:

    Keep strong Beautiful Anna, you are doing extremely well. Ann Marie, Peter and Nathan you are constantly in our thoughts and whilst I wasn’t one for praying much until now…. From so far away that is the one thing I can do for you all. Keep smiling Anna and demanding those cornflakes – made me smile to imagine you being so assertive with mummy et al….. Continue to demand, love to you all xxxx

  3. Sharon Wallace says:

    I am beyond words, having written and deleted three different comments. Just know that if everyone’s thoughts, wishes, prayers and love were enough to heal and make well, then it would be done by now. Cant imagine how you got through yesterday. Love and lots of it xxx

  4. Allan (Ann Marie's Cousin) says:

    I have been watching Anna’s blog closely & had been very pleased to note that the posts were more & more spread out, (no news is good news!), until reading this devastating post today. This turn of events must have hit all of you guys really hard & all I can think of to say is to try to remain strong & positive. My thoughts & hopes are very much with you.
    Allan xxx

  5. ann margaret lamb says:

    Thinking of u all in this hard fight, such amazing strength shown. Hope Anna has a comfortable w’end. Hugs, Ann Margaret x

  6. Jane Wilson says:

    I’m not one for kneeling down and praying, but I’ve just searched online for a healing prayer, printed it out and stuck it on the fridge so that whenever I see it, I read it with Anna in my heart.

    ‘Lord, look upon Anna with eyes of mercy, may your healing hands rest upon her, may your life giving powers flow into every cell of her body and into her soul, cleansing and restoring her to whole ness and strength.’

  7. Rosemary (Anna's Great Aunt) says:

    Love to you all,and how is Nathan coping? I agree with all the replies above.
    On the subject of Prayer St Peregrine is the Patron Saint for Cancer patients
    http://saints.sqpn.com/saint-peregrine-laziosi/
    As you may know I am to have surgery and found it very comforting to receive the Sacrement of the SICK. This annointing gave me and mine enormous spiritual and physical benefit/relief
    Continued Love and Prayers from us
    Rosemary And Kevin XXXXX

  8. Vikki Pearce says:

    We are all praying for you all here. Keep strong. I wish I was there to give you a big hug and be more help. Love to you all. Viks, Dave, Mike and Tom (and Mum too) xxxx

  9. hazel mckellar says:

    Feeling so much for you all when I read this blog, am so so sorry that Anna had to go through this and I can’t imagine how frightened you must have been. I have been praying hard for Anna and you all and will keep this going. I hope and pray the weekend is not eventful for you. Keep strong. Hazel McK x

  10. anne mawer says:

    Ann-Marie, we are thinking of you very much.
    hope Anna feels better soon.what a worry it must have been.
    Keep positive

    Anne x

  11. Sylvie Mawer says:

    All our love and prayers are with you all always….keep strong together, all our love, Sylvie, Anthony & co….

  12. Sue says:

    Thoughts are with you all xxx

  13. Tracy says:

    You are all in my prayers – for healing for Anna and strength for you, Peter and Nathan. I hope things are improving this weekend.

    Tracy xx

  14. fiona says:

    Oh how frightening it must have been, we are all thinking of you and hope Anna continues to be calm and they track down what is going on..All our love to you

  15. Andrew says:

    So sorry to hear about Anna. Still hopefully things will get better as the week goes on.

  16. Ruthie says:

    That’s really terrible news, but I think Anna will continue to battle on against it all, I think she’s doing amazingly well dispite all the things thrown at her.

  17. Anne Thomson says:

    Just to say that Anna is in our thoughts Ann Marie, Peter and Nathan. I hope she has continued to recover over the weekend. I can’t begin to imagine how difficult times are at the moment. Your courage and spirit are so inspiring. I hope this week is a better week for you all.
    Love Anne x

  18. scoopminime says:

    What a remarkable photograph of Anna laughing at something she obviousy found very funny indeed. What provoked such joy and laughter? She is obviously massively bright, resilient and responsive. How could she not be with your genes. Who knows what she will be capable of with an iron will such as she has. There is no limit to the patience, the determination, forbearance and sheer bloody mindedness of children who are having to struggle against the odds. And what is more, they have extraordinary courage, wisdom and an infinite capacity to bear hardship with dignity and optimism. I have only just this week read a rather moving account by one of my Higher English pupils who said that when her nephew was placed on the danger list because of a damage to his trachea inflicted by an inexperienced doctor inserting the tube for his tracheotomy operation, she underwent a major transformation having witnessed the way he coped with his trials and tribulations, while she went into histrionic meltdown. And what is more, it turned her from being an atheist, under the influence of her parents, into being a Believer, because she could not explain any other way to make sense of the stoic, heroic and good-natured acceptance by the child of its condition.

    Whatever the future for Anna, however difficult, the spirit of the child will make you all stronger, humbler, more grateful. Meanwhile, we all pray like mad that modern medicine and her raging willpower will carry her through to better health and a comfortable, manageable, stable life. Prayer flags hoisted and blowing in your direction.

  19. Jane Hurworth says:

    Poor Anna, and what a shocking time for you, Peter and Nathan. She must be a fighter!! I hope the doctors find the problem soon so Anna can concentrate on getting better. Love to you all, Jane

  20. Lynne says:

    Hope that you’ve managed to get to the bottom of the cause. What an awful few hours it must have been, Love from the Lamonts x

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