Anna’s trip to the shop

Anna made a trip to the WRVS shop today in her wheelchair to buy a Barbie magazine! The shop is sitiuated just outside the ward at the front entrance to the RHSC Edinburgh. It was lovely to see her propel herself (albeit slowly) for a fair part of the way there and back. She wasn’t up for showing herself smiling much but you can see she was pleased with herself!

Anna then had a playtime with Charlotte the OT, supported in a piece of equipment designed to allow her to stand and her legs to be load supporting – the idea being to build back up the muscles in a childs legs after treatment with e.g. chemotherapy.

Anna has been getting gradually better in  terms of her shingles rash, her temperature and the amount of pain she is in. But she still is in pain from her reflux (although that is also much better) and she is anticipating pain from being lifted, etc when none actually exists (understandable given what she’s been through!).

She is so much better that we are anticipating coming home again very soon, although she remains very weak.

The more accurate test results from her lumbar puncture of a couple of weeks ago have come back and we are told that Anna is now officially designated LOW RISK. This means that the eventual outcome of her Leukaemia (ALL) is more likely to be positive!!!

Daily chemotherapy plus other drugs via her NG tube (delivered at home by Ann Marie or myself) and weekly visits to RHSC for chemotherapy via a lumbar puncture will be required for the next block of her treatment.

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