anna's blog

Our beautiful, gorgeous little girl, Anna, has leukaemia. She was diagnosed on Monday 5 December 2011.

Really good news

on January 6, 2012

We’ve had really good news regarding Anna’s 28 day bone marrow sample. At the beginning of the block, a bone marrow sample contained massive amounts of leukaemia cells. In a bone marrow sample taken on day 28, none were visible when viewed down a microscope. This is as good a result as we can get at this stage! The bone marrow sample will be analysed in greater detail in the lab to identify if there are any non-visible cells remaining but certainly we are delighted. We are told by the doctors and consultant that this 28 day sample is considered to be a very effective indicator of progress. We are so pleased!

Anna’s first block of treatment has come to an end. Children can be put on regimen A or B (I think that there are only the 2 regimens but not sure) depending on how they first present. She is on an adapted version of regimen A. It is adapted as one of the chemotherapy drugs can cause weakness in the leg and arm muscles. In Anna’s case because she already has an underlying weakness due to her SMA, the worst case side effect could be permanent paralysis – so everyone agreed she should have an alternative! During this 5 week block she has had daily steroids and weekly chemotherapy. It seems to be the most intensive and aggressive part of the 2 year treatment. For the next block we will (hopefully) be back home with weekly trips in to RHSC for Anna to have chemotherapy under a general anaesthetic. It will be inserted into the fluid around her spine and brain as a preventative measure. She will have other medicines to be given at home. Poor, poor Anna. She is being such a good girl but really is very weak at the moment. However, the shingles seems to be responding well to the anti-virals and we are hoping to get home sometime next week. Although she has isolation nursing, Peter, Nathan and I can come and go. Nathan continues to be a wonderful big brother, giving Anna hugs and kisses.

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12 responses to “Really good news

  1. clare ( one of Ann Marie's 3 sisters) says:

    I am delighted to hear really good news. I hope it gives you a boost. You are doing wonderfully lots of love Clare and the boys

  2. Heather says:

    That’s great news! Anna is doing so well.
    Xxxx

  3. Jane Martin says:

    Great to hear the news that Anna’s treatment is making a difference at this early stage. You are all amazing and Anna is very lucky to have such devoted parents and a wonderful big brother. Hang in there. From your blogs it sounds like you are being very strong but I’m sure it’s tough to watch your little girl going thro’ such agressive treatments. We feel for you and we hope and pray Anna continues to respond and keeps going in the right direction. It’s a shame you missed Disney – here’s hoping you can get there one day soon. Jane, from Errol xx

  4. Veronica Whiteside says:

    Delighted with your good news. Lovely to see Anna perking up a little.

  5. Helen & Paul says:

    Fantastic to get this positive news. Hope things continue to more in this direction. x

  6. anne mawer says:

    Couldn’t hope for better outcome really! Well done Anna and keep it up! Have a happy new year !

  7. Allan (Ann Marie's Cousin) says:

    The headline says it all! Great news!

  8. Arturo says:

    Thats excellent news. All the very best.

    Arturo and Moira

  9. Sue says:

    This is reaaly great news. xxx

  10. Lynne says:

    What a wee fighter you must be so proud of her. Delighted to hear the news about the sample. Gosh if anyone deserves good news it is the four of you! If we can help with anything at all then please just shout. Very best wishes from us all x

  11. Mary says:

    Great to hear such good news. Hope that Anna’s home soon and starts to get stronger. Lots of love Mary xxx

  12. Tracy says:

    Fabulous news that Anna’s responding so positively to her treatment. Hope she’ll be home with you all really soon. Tracy xxx

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