Anna slept well (apart from the usual interruptions for obs and medicines at 10pm, 2am and 6am) and was up and dressed today – the first time for a week and had a bath – again, the first time for a week (I have been washing her using a small baby bath until now). Considering how ill she was only a week ago, the transformation is remarkable. She is off her drip and only having bloods taken once a day (that apparently is a good sign – I’m still getting to grips with all the ward etiquette).
Most impressively, she has been out on the ward today and yesterday walking (with support). Over the last few months, Anna’s mobility had decreased to the point that she was no longer walking unaided at all and usually only a few steps with support. We had all been puzzled at the rapid deterioration in her mobility due to the spinal muscular atrophy (SMA). Now it seems possible that this deterioration was due to the developing leukaemia rather than the SMA itself. We, and the doctors at Sick Kids, are not aware of any other cases of SMA and leukaemia together in one individual. It would be interesting to know if there are. It also has implications for her treatment, in that some medicines could have adverse effects which would be exacerbated by her SMA.
If we are going to be on the ward for 4-6 weeks, then we might as well use the time well so we now have physiotherapists working (hopefully) daily with Anna, along with play specialists and the occupational therapist.
A HUGE thank you from all of us but especially Anna for all the gorgeous gifts that arrived today and over the weekend. Her comments on opening presents are usually something like ‘WOW – I love this!!!’ . She is a very appreciative little girl.
anna's blog 
This post was worth staying up for. Delightful
photo.
Great to hear how Anna is doing….Love to you all xxx
Anna looks gorgeous in this picture! The return of strength seems encouraging and I’m glad she had a good day.
What exactly are play specialists? xxx
Really glad she’s had a good day,
+ lovely photo,
Mary xxxx
We have just heard about Anna. She and all the family are in our prayers.
Love Robert and Angela ( Arabella’s father and step mother)
She looks amazing well done Anna ❤
Great to hear that Anna is doing so well. A wee shining star. An absolutely adorable photo of an adorable girl.
Kx
Great picture of Anna looking good. So pleased to hear she is copying so well and I hope the rest of the family are managing. Such encouraging news aswell if their is anything I can do to help make life a bit easier for you all please just ask.
Chloe and Zara want to send Anna special hugs and kisses. xx